How to Ask For Support

Shelley Beverley (MCAP member and psychologist) provides guidance for the important conversation on mental health and how to get the support you need.

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Australian Genomics' Mitochondrial Disease Flagship Update

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At a Mito Information Day, Professor Christodoulou AM shared an update on the Australian Genomics Mitochondrial Flagship research project.

Mitochondrial Donation Q&A Webinar

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A panel of mito experts answered questions from the community about the next steps for Maeve’s Law after it was passed in March 2022.

Advance Care Planning

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During a Mito Connect Call, Carolyn Vaughan presented on the value of advance care planning. This included the importance of deciding who will make health decisions on your behalf and how to engage in the conversation about end of life.

Grief, Loss and Bereavement

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During a Mito Connect Call, Wendy Liu (Specialist Grief Counsellor, Couple & Family Therapist, and Accredited Mental Health Social Worker), covered a range of topics to help understand and manage grief and loss.

Driving Change for the Mito Community

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At a Digital Mito Information Day, Clare Stuart (Mito Foundation Policy & Advocacy Manager) spoke about Mito Foundation’s policy and advocacy work, including mitochondrial donation, improving access to genetic technologies and working to improve supports available through NDIS and other government programs.

Managing Mito, clinical practice and mito experiences

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At a Digital Mito Information Day, Janet Long and Stephanie Best presented work done around the management of mito from the perspective of clinicians and people with mito. This included work on how apps, telehealth and other virtual resources can assist with problems unique to living with a rare disorder

Maeve's Law: The path to now and what lies ahead?

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At a Digitial Mito Information Day, Prof David Thorburn summarised the progress on mitochondrial donation and presented other reproductive options that community members can access.

Genetic Counselling and Mito

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Mito Registry Co-ordinator and recent graduate Genetic Counsellor, Emma Celis, explains the role of genetic counselling for both those with a confirmed mito diagnosis and those with suspected mito who are still searching for answers.