How to Ask For Support

Shelley Beverley (MCAP member and psychologist) provides guidance for the important conversation on mental health and how to get the support you need.

 

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Link to The Benefits of a Genetic Diagnosis Video

The Benefits of a Genetic Diagnosis

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At a Tasmania Mito Information Day, Dr. Christina Liang (Staff Specialist Neurologist) spoke about the benefits of receiving a confirmed genetic diagnosis for mitochondrial disease.

Link to Using Activity to Enable, Empower & Optimise Your Health Video

Using Activity to Enable, Empower & Optimise Your Health

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At a Tasmania Mito Foundation, Phil Ladlow (Neurological Physiotherapist) spoke about the role and benefits of exercise and positive lifestyle activities in optimising wellbeing in individuals with mito.

Link to Advocating For Your Children At School Video

Advocating For Your Children At School

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During a Mito Connect Call, Michele Hemmings (Patient Pathways Nurse) shared advice to advocate for children at school to ensure they are getting the best support.

Link to Navigating the NDIS during COVID-19 Video

Navigating the NDIS during COVID-19

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During this timely Mito Connect Call, Tammy Whait (Inclusion Support Solutions) explores how to access the National Disability Insurance Scheme (NDIS) benefits if your situation has changed.

Link to Tips on how to strengthen your case for NDIS support Video

Tips on how to strengthen your case for NDIS support

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At a Perth Mito Information Day, Tammy Whait covered ways to strengthen your case for NDIS support when applying for the first time or approaching a plan review.

Link to Physiotherapy options for Children living with Mito Video

Physiotherapy options for Children living with Mito

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At a Perth Mito Information Day, Amy Piesse explored best practice physiotherapy options for children living with mito.

Link to Diagnostics changes from genomics and new technology Video

Diagnostics changes from genomics and new technology

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At a Perth Mito Information Day, Prof. David Thorburn provided an overview of the causes of mitochondrial disease and how the diagnostic process has been changed by genomics and other new technologies.

Link to Palliative Care - Supporting the Child and Family Video

Palliative Care - Supporting the Child and Family

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At a Digital Paediatric Mito Information Day, Dr Martha Mherekumombe shared an overview of paediatric palliative care.

Link to Diet and Exercise for Children with Mito Video

Diet and Exercise for Children with Mito

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At a Digital Paediatric Mito Information Day, Dr Maina Kava spoke about nutritional and exercise therapies that specialists use to improve the quality of life and health outcomes for children with mito.

Link to Update on Supplements and Treatments for Children with Mito Video

Update on Supplements and Treatments for Children with Mito

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At a Digital Paediatric Mito Information Day, Dr Shanti Balasubramaniam provided an overview of the therapeutic approaches used to treat patients with primary mitochondrial disorders.