In this Mito Connect Call, Ruth Yuthok (Mito Foundation’s NDIS Navigator) discusses finding quality NDIS services and supports.
At a Melbourne Mito Information Day, Cameron McKnight discussed how he has used human stem cell models of mitochondrial disease to study promising drug treatments for heart muscle cells.
Rachael Havrlant (Transition Care Network) spoke about the transition from paediatric care to adult care. She covered the basics and touched on the surprises people may face as they move to adult care. She also covered the difficulties children can face during the transition phase and how their families/carers can support them to have a better experience.
Dr Balasubramaniam spoke at a Mito Information Day on the pathways to genetic tests for children.
She delved into the barriers that families often face when considering genetic testing and gave valuable insights into what families should be aware of before making the decision to pursue genetic testing.
This Mito Connect Call introduces the Mito Foundation Peer Support Network. The network offers one-on-one support for mito community members. We know that sometimes the best support comes from someone who has similar experiences to you. Watch this recording to learn more about the Peer Support Network, including how to access it.
In this Mito Connect Call, Ruth Yuthok (Mito Foundation’s NDIS Navigator) introduced new web content full of valuable resources and case studies that reflect the positive impact of assistance on individual NDIS plan outcomes.
Michelle Cao explains the importance of genetic testing, the difference between direct-to-customer genetics tests and why your medical team may not accept their results, along with introducing the process of getting a genetic test in Tasmania.
Dr Christine Wools is a Melbourne-based Neurologist who works closely with the mito community. She explores the topic of mito and the gastrointestinal system – the clinical features and management of these.
Katie Tharle introduces Hearing Australia and provides an overview of what they do around the country. She also talks about hearing aids, the different kinds and options, the pros and cons of these options, and the services Hearing Australia offers.
Prof Mary Kay Koenig discusses the most common seizures found in children and adults with mito, reviews how and why seizures occur, and the treatment and precaution recommendations.
