At a Mito Information Day, Dr Quin spoke about the value of involving a General Paediatrician in your child’s care.
At a Mito Information Day, Dr Lopez Sanchez spoke about her research into Leber hereditary optic neuropathy (LHON), including the promising findings of her latest project.
At a Mito Information Day, Professor Christodoulou AM shared an update on the Australian Genomics Mitochondrial Flagship research project.
A panel of mito experts answered questions from the community about the next steps for Maeve’s Law after it was passed in March 2022.
During a Mito Connect Call, Carolyn Vaughan presented on the value of advance care planning. This included the importance of deciding who will make health decisions on your behalf and how to engage in the conversation about end of life.
During a Mito Connect Call, Wendy Liu (Specialist Grief Counsellor, Couple & Family Therapist, and Accredited Mental Health Social Worker), covered a range of topics to help understand and manage grief and loss.
At a Digital Mito Information Day, Clare Stuart (Mito Foundation Policy & Advocacy Manager) spoke about Mito Foundation’s policy and advocacy work, including mitochondrial donation, improving access to genetic technologies and working to improve supports available through NDIS and other government programs.
At a Digital Mito Information Day, Janet Long and Stephanie Best presented work done around the management of mito from the perspective of clinicians and people with mito. This included work on how apps, telehealth and other virtual resources can assist with problems unique to living with a rare disorder
At a Digitial Mito Information Day, Prof David Thorburn summarised the progress on mitochondrial donation and presented other reproductive options that community members can access.
Mito Registry Co-ordinator and recent graduate Genetic Counsellor, Emma Celis, explains the role of genetic counselling for both those with a confirmed mito diagnosis and those with suspected mito who are still searching for answers.
