Symposium 2021 - The Patient Perspective

During the 2021 Mito Foundation Symposium, Rebecca Patterson spoke about the importance of mitochondrial donation for her life and others within the community.

 

 

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Link to Driving Change for the Mito Community Video

Driving Change for the Mito Community

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At a Digital Mito Information Day, Clare Stuart (Mito Foundation Policy & Advocacy Manager) spoke about Mito Foundation’s policy and advocacy work, including mitochondrial donation, improving access to genetic technologies and working to improve supports available through NDIS and other government programs.

Link to Managing Mito, clinical practice and mito experiences Video

Managing Mito, clinical practice and mito experiences

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At a Digital Mito Information Day, Janet Long and Stephanie Best presented work done around the management of mito from the perspective of clinicians and people with mito. This included work on how apps, telehealth and other virtual resources can assist with problems unique to living with a rare disorder 

 

Link to Maeve's Law: The path to now and what lies ahead? Video

Maeve's Law: The path to now and what lies ahead?

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At a Digitial Mito Information Day, Prof David Thorburn summarised the progress on mitochondrial donation and presented other reproductive options that community members can access.

 

Link to Genetic Counselling and Mito Video

Genetic Counselling and Mito

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Mito Registry Co-ordinator and recent graduate Genetic Counsellor, Emma Celis, explains the role of genetic counselling for both those with a confirmed mito diagnosis and those with suspected mito who are still searching for answers.

Link to Demystifying Palliative Care – it’s more Video

Demystifying Palliative Care – it’s more

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Carolyn Vaughan (Public Health Palliative Care Unit, La Trobe University) led a discussion to demystify Palliative Care to improve our understanding of the many benefits of the service.
Link to Mitochondrial protein quality control: Keeping cells healthy Video

Mitochondrial protein quality control: Keeping cells healthy

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During a Mito Information Day, Meghan spoke about protein quality control and its importance to maintain healthy mitochondria.

Link to Mitochondrial Disease and Optic Neuropathy Video

Mitochondrial Disease and Optic Neuropathy

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Dr Kate Ahmad is a Sydney neurologist specialising in Neuro-ophthalmology and neurogenetics.  She spoke about the impact of mitochondrial eye disease and how to live well with them, focusing on inherited optic neuropathies.

Link to Q&A with Accredited Exercise Physiologists Video

Q&A with Accredited Exercise Physiologists

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During a Mito Connect Call,  three Accredited Exercise Physiologists who voluntarily collaborate to improve outcomes for patients with mito, answered questions from the community.

Link to Symposium 2021 - IVF Implementation Video

Symposium 2021 - IVF Implementation

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During the 2021 Mito Foundation Symposium, Professor Megan Munsie touched on the challenges in the Australian context and how they might be overcome

Link to Symposium 2021 - Clinical Application Pt.2 Video

Symposium 2021 - Clinical Application Pt.2

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During the 2021 Mito Foundation Symposium, Dr. Suzanne Sallevelt explored other reproductive options outside of mitochondrial donation.