Mitochondrial Donation Update - November 2022

 

This webinar shared details of the progress towards making mitochondrial donation available in Australia and discussed topics you may want to explore with your family and health professionals.

Disclaimer: Resources provided by the Australian Mitochondrial Disease Foundation Limited (Mito Foundation), offers general information and is not a substitute for medical advice. It is essential to assess the suitability of the content for your individual circumstances and make decisions based on your medical condition. The information's accuracy is subject to change, and we do not guarantee ongoing currency or availability. While efforts are made to ensure accuracy, Mito Foundation is not obligated to provide updated information. The copyright for this document and its content belongs to, or is licensed to, Mito Foundation, and reproduction without prior written consent is prohibited.

More Videos

Link to Powering progress: The future of clinical trials for mito Video

Powering progress: The future of clinical trials for mito

View Video

Mito Foundation and Research Australia hosted this event to discuss increasing clinical trials for mitochondrial disease (mito) in Australia. Speakers included people with lived experience and leaders in the field. Together, they brought wide-ranging life experiences and professional insights. They discussed:

  • the clinical trial process
  • why some trials not coming to Australia and what can we do to change this
  • how we can work together to shape the future of clinical trials.

The event was recorded on 16 April 2025.

Learn more about our plan to increase clinical trials for mito in Australia.

Link to Managing Mito Webinar: Exercise and mito Video

Managing Mito Webinar: Exercise and mito

View Video

This event focused on exercise and mitochondrial disease (mito). It was led by Jeremey Horne, a physiotherapist.

This event was recorded on Thursday 27 February 2025. It is available to watch, listen, or read about.

Link to Grief, loss and bereavement Video

Grief, loss and bereavement

View Video

This event focused on grief, loss and bereavement. It was led by Wendy Liu, a Specialist Grief Counsellor, Couple & Family Therapist, and Accredited Mental Health Social Worker. This event was recorded in 2022. Visit our website to listen to or read about this event.

Related resources

We understand that this topic may bring up strong emotions. If you need support, please contact us at supportservices@mito.org.au or call our Helpline on 1300 977 180.

Link to There is more to LHON than blindness Video

There is more to LHON than blindness

View Video

At the Mito Community Summit 2024, Dr Sandra Staffieri, AO, explored the impacts of Leber Hereditary Optic Neuropathy (LHON) beyond the symptoms.

Dr Staffieri is a clinical and research orthoptist with several decades of experience. She is also a 2023 Mito Foundation Project Grant recipient. Her project focusses on LHON, a type of mitochondrial disease (mito).

This event was recorded on Sunday 1 December 2024. It is available to watch, listen, or read about.

Link to Genetic treatment of mito — How close are we? Video

Genetic treatment of mito — How close are we?

View Video

At the Mito Community Summit 2024, Professor Carlos Moraes discussed current and emerging research into genetic treatments of mitochondrial disease (mito).

Professor Moraes is currently the Esther Lichtenstein Professor in Neurology at the University of Miami. He has spent more than 30 years studying the genetic causes of mito.

This event was recorded on Saturday 30 November 2024. It is available to watch, listen, or read about.

Link to Meet the Expert Series: Dr Drago Bratkovic Video

Meet the Expert Series: Dr Drago Bratkovic

View Video

This event focussed on advancements in mitochondrial disease (mito). It was led by Dr Drago Bratkovic, an expert specialist in metabolic medicine and genetics, and Toni Catton, the General Manager of the Mito Foundation.

This event was recorded on Monday 9 December 2024. It is available to watch, listen or read about.

Link to Pregnancy guidance <br>with mito Video

Pregnancy guidance
with mito

View Video

This event focused on guidance for pregnancy and mito. It was led by Professor Lisa Hui, a Professorial Fellow in Maternal Fetal Medicine at the Mercy Hospital for Women. The event was recorded on Monday, November 11, 2024. It is available to watch, listen to, or read about.

Related resources:

We understand that this topic may bring up strong emotions. If you need support, please reach out to us at supportservices@mito.org.au or call our Helpline on 1300 977 180.

Link to Grief and chronic illness conversation Video

Grief and chronic illness conversation

View Video

This event focussed on the emotional challenges of chronic illness. It was led by Nathan MacArthur, an experienced grief counsellor. This event was recorded on Wednesday 9 October 2024. It is available to watch, listen or read about.

Related resources

We understand that this topic may bring up strong emotions. If you need support, please reach out to us at supportservices@mito.org.au or call our Helpline on 1300 977 180.

Link to Nutrition tips for children with mito Video

Nutrition tips for children with mito

View Video

This event focussed on nutrition tips for children with mitochondrial disease (mito). It was led by Ashleigh Mitchell, a specialist paediatric dietitian.

This event was recorded on Wednesday 28 August 2024. It is available to watch, listen or read about.

Link to Meet the Expert Series: Professor Carolyn Sue Video

Meet the Expert Series: Professor Carolyn Sue

View Video

This event focussed on health services for people impacted by mitochondrial disease (mito). It was led by Professor Carolyn Sue AM, an expert who specialises in mito, and Mito Foundation’s General Manager, Toni Catton.

This event was recorded on Thursday 12 September 2024. It is available to watch, listen or read about.