The NDIS Journey
Preeti Raghwani (mito community member and NDIS Support Coordinator) provided an introduction to navigating the National Disability Insurance Scheme (NDIS) as someone who has lived through it herself with her daughter Ziya and professionally as an NDIS support coordinator.
Driving Change for the Mito CommunityView Video
At a Digital Mito Information Day, Clare Stuart (Mito Foundation Policy & Advocacy Manager) spoke about Mito Foundation’s policy and advocacy work, including mitochondrial donation, improving access to genetic technologies and working to improve supports available through NDIS and other government programs.
Managing Mito, clinical practice and mito experiencesView Video
At a Digital Mito Information Day, Janet Long and Stephanie Best presented work done around the management of mito from the perspective of clinicians and people with mito. This included work on how apps, telehealth and other virtual resources can assist with problems unique to living with a rare disorder