Update on Supplements and Treatments for Children with Mito

Dr Shanti Balasubramaniam provided an overview of the therapeutic approaches used to treat patients with primary mitochondrial disorders.

 

You can download the presentation slides here.

 

 

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Link to Diagnostics changes from genomics and new technology Video

Diagnostics changes from genomics and new technology

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At a Perth Mito Information Day, Prof. David Thorburn provided an overview of the causes of mitochondrial disease and how the diagnostic process has been changed by genomics and other new technologies.

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Palliative Care - Supporting the Child and Family

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At a Digital Paediatric Mito Information Day, Dr Martha Mherekumombe shared an overview of paediatric palliative care.

Link to Diet and Exercise for Children with Mito Video

Diet and Exercise for Children with Mito

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At a Digital Paediatric Mito Information Day, Dr Maina Kava spoke about nutritional and exercise therapies that specialists use to improve the quality of life and health outcomes for children with mito.

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The Importance of Quality of Life

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Shelley Beverley, Registered Psychologist and Mito Community Advisory Panel (MCAP) member, presented the importance of wellbeing and maintaining a quality of life while living with mitochondrial disease (mito).
Link to Patient Pathways Program Introduction Video

Patient Pathways Program Introduction

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Michele Hemmings (Patient Pathways Telehealth Nurse) introduces the Patient Pathways Program and shares why members of the mito community can benefit from accessing this service. To learn more, please call our Helpline on 1300 977 180 or email helpline@mito.org.au

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How to Ask For Support

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Shelley Beverley (MCAP member and psychologist) provides guidance for the important conversation on mental health and how to get the support you need.

Link to Mindfulness to Manage Your Health and Life Changes Video

Mindfulness to Manage Your Health and Life Changes

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Carolyn Uhlmann (Psychologist), provides great tips to manage the health and wellbeing changes that come with mito through practical mindfulness techniques.
Link to The Emotional Challenges of Physical Symptoms Video

The Emotional Challenges of Physical Symptoms

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Shelley Beverley (mito community member and registered Psychologist) walkthrough the emotional toll of mito from a professional and personal perspective. Please clickthrough to download the PDF presentation.
Link to The NDIS Journey Video

The NDIS Journey

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Preeti Raghwani (mito community member and NDIS Support Coordinator) provides an introduction to navigating the National Disability Insurance Scheme (NDIS).

Link to How Might Supplements Fit into the Overall Treatment of Mito Video

How Might Supplements Fit into the Overall Treatment of Mito

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Dr Christina Liang explores different supplement options for people living with mito and how they may fit into treatment plans.