Mito Foundation acknowledges there are multiple sources of information published about medication that is safe or to be avoided by individuals with mitochondrial disease (mito). In 2020, International Mito Patients (IMP) published the list of medicines to be used with caution in primary mitochondrial disease.  This publication replaces the 2015 Safe Medicines list previously published by IMP.  

The list of medicines to be used with caution in primary mitochondrial disease is a list of medicines (drugs) compiled by a group of experts in mitochondrial disease (doctors, pharmacists and scientists), after careful consideration and consultation, reflecting the latest clinical and scientific evidence.  

Other sources, including the Mitochondrial Disorders: Medicines to Avoid, may contain different advice due to different methodologies used in the analysis and research.  

It is recommended that you seek advice from your doctor(s) regarding any medication.  You may wish to share the "List of medicines considered safe to use" and the "List with points of attention" with your doctor(s) and discuss with them what this means for you and your particular type of mitochondrial disease.

It is important to remember that side effects can occur with any medicine in any patient. This can affect anyone taking the medicine and may not be related to your mitochondrial disease. It is therefore essential that you take the advice of your doctor and read the information given with the medicine.

If you need assistance finding a specialist, please reach out to our Helpline.

References:

  1. List of medicines to be used with caution in primary mitochondrial disease. International Mito Patients (IMP) website, published February 2020. This replaces the 2015 safe medicines list produced by IMP.
  2. Mitochondrial Disorders: Medicines to Avoid. New Zealand Medicines and Medical Devices Safety Authority (Medsafe), published June 2017