Often the first time teachers hear about mitochondrial disease (mito) is when a child in their school is diagnosed. It can be difficult to understand mito, as it can be an invisible illness. The Mito Foundation resources can help teachers understand what mito is and how to care for an affected student.
Mito 4 Kids is a school education program for children in years K-6. The program is designed to help school aged children, their parents and teachers better understand the needs of children who are affected by mito at school.
Designed and written by Martine Vanderspuy and illustrated by Dean Crawley and Martine Vanderspuy, A Little Book about Mito is designed to help school aged children understand what mito is and how it can affect your body.
This letter template will help parents and carers inform their child’s teacher about what mitochondrial disease, what symptoms the child has, and what the school and teacher can do to help.
The following articles are not endorsed by the Mito Foundation but may be useful when communicating with school staff.
This guide, developed by Genetic Alliance (U.S), assists parents in developing letters for their child’s teachers, coaches/P.E teachers and school nurses. As this is a resources from the U.S, some aspects might not be applicable or may need to be adjusted to suit your child’s situation.
A short article explaining how children work when suffering with mitochondrial disease. It explains that children with mito often seem like they are ‘zoning out’ when in fact they are experiencing very typical symptoms of mitochondrial disease.
A short article for teachers, explaining adjustments that could be made in the classroom for students with mitochondrial disease.
You may find it appropriate to supply your child’s school with other the Mito Foundation resources on mitochondrial disease. Click here to access our Mito Resources page.