These resources can help you better understand the needs of your student with mitochondrial disease (mito) and how to best support them. These include the Mito 4 Kids education pack for children in year K-6 as well as general information about mito.

If you need any assistance or someone to talk to, contact our Helpline. Call 1300 977 180 or submit a Helpline request form.

Resources

Mito 4 Kids education pack

The Mito 4 Kids education pack is a school education program for children in years K-6. The program is designed to help school aged children, their parents and teachers better understand the needs of children who are affected by mito at school.

The pack contains A Little Book about Mito as well as supporting activities to help engage students in thinking about how they can help children with mito. Reading the book, discussions and the accompanying activities take around 40 mins to complete. 

Mito Foundation hopes that this program will help teachers and students understand mito and better support children with mito at school.

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Understanding mito

A general guide to help understand mito, with information about mitochondria, types of mito and symptoms.

Other resources

1. Understanding the energy/sensory connection: mitochondrial disease

A short article explaining how children work when affected by mito. It explains that children with mito often seem like they are ‘zoning out’ when in fact they are experiencing very typical symptoms of mito.

2. Energy 4 Mito

Produced by MitoAction in the United States, this includes a video that includes the perspectives of children with mito and the ways they have found navigate mito and their education.

3. Classroom Adjustments Podcast

A series that highlights adjustments that can be made in the classroom to enable students with disability to access and participate in education on the same basis as their peers. Whilst there is no episode on mito, many of the topics covered will be of use to teachers of children with mito or suspected mito.

4. Understanding the energy/sensory connection: mitochondrial disease

A short article explaining how children work when affected by mito. It explains that children with mito often seem like they are ‘zoning out’ when in fact they are experiencing very typical symptoms of mito.

5. All Play Learn Program
Includes extensive information about supporting children transitioning between schools, managing student anxiety, and information for within the classroom for children with disabilities.

6. Students Living with a Genetic Condition: A Guide for Parents

This guide, developed by Genetic Alliance (U.S), assists parents in developing letters for their child’s teachers, coaches/P.E teachers and school nurses. As this is a resources from the U.S, some aspects might not be applicable or may need to be adjusted to suit your child’s situation.