Support services for people impacted by mito

We aim to provide a range of services to support you at all stages of your mito journey. Our Helpline is here to answer your questions and guide you to get support. Our Mito Connect events connect mito community members to information from leading mito experts and health providers. And our Mito Meet-ups bring mito community members together to share experiences and learn from others.

Our dedicated Pathways Telehealth Nurse will work with you to develop a tailor-made care plan to provide support, education and connection with other services.

Join the Australian Mitochondrial Disease Patient Registry. Should you wish to join the Registry, you’ll need to provide information on your diagnosis.

Our dedicated NDIS Navigator will work with you to improve your access to NDIS supports and services through education, resources and one-on-one guidance.



Call the Mito Helpline to talk to a support officer for general advice, assistance in seeking a referral or more information on Mito Foundation support services.

Find a medical professional in your local area, we have collated a list of professionals from around Australia.

Attend a support event in your local area, including Mito Information Days, Mito Meet-ups and Mito Connect Calls.