Mito Foundation offers information and support for people living with mitochondrial disease (mito), their families, friends and carers.

Whether you have a question, are looking for practical information or want to connect with others, you can start with the option that is most relevant to you.

Not sure where to start?

The Mito Foundation Helpline is a starting point for questions about mito and the support available through Mito Foundation.

A member of our Support Services team can:

  • listen to what is happening for you
  • provide information about mito
  • explain Mito Foundation services and resources
  • help you find information that may be relevant to you.

Contact us

Call Mito Foundation's Helpline for more information or assistance on

Please note the Helpline is available Monday to Friday, excluding NSW public holidays.

Immediate support

If you or someone you know needs emergency assistance, please call emergency services on

000

Mental health support

This page shares information and resources to help you find mental health support that works for you.

How Mito Foundation can support you

Peer Support Network

Access one-on-one support through the peer support network to connect with others who have lived experience of mito.

NDIS Navigation

Access free, independent information, resources and individual guidance about the National Disability Insurance Scheme (NDIS).

Mito events

Our events are opportunities to build knowledge, connect, and share experiences with the mito community.

Mental health support

Find mental health and wellbeing information for people living with mito, families, friends and carers.

Find support for your situation

Adults living with mito

Find information about support for different parts of life with mito, including connecting with others, disability and financial support, work, everyday life and wellbeing.

Children with mito and their families

Find information about support for your child and family, including connecting with others, school and education, disability support, family wellbeing and practical assistance.