World Mitochondrial Disease Week

Monday 14 to Sunday 20 September 2026

 

What is World Mitochondrial Disease Week?

Each September, the global mito community — families, friends, researchers, and supporters — comes together for World Mitochondrial Disease Week (WMDW). It’s a time to connect, to raise awareness, and to remind the world why mito matters.

This year promises to be the biggest yet, with communities in Australia and around the globe lighting up landmarks, sharing stories, and sparking conversations.

World Mitochondrial Disease Week is a time for the mito community and mito organisations to connect around the world. Our collective ambition is to increase the visibility and understanding of mito.

 

Key dates

The Bloody Long Walk Perth: Sunday 13 September

Register to walk or volunteer.

Thymidine kinase 2 deficiency (TK2d) awareness day: Tuesday 8 September

Leber hereditary optic neuropathy (LHON) awareness day: Saturday 19 September

Light Up 4 Mito: Saturday 19 September

Light up bulb

Australia shines green

From the Melbourne Cricket Ground and Luna Park Ferris Wheel to landmarks across Europe, Asia, and the USA, Light Up for Mito is a truly global event.

Each green light represents hope, solidarity, and a future where mito is better understood, better treated, and one day, cured.

LIGHT UP FOR MITO IN

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“Light Up for Mito is a time to shine a light on this disease, start conversations, and demystify a once unheard-of diagnosis.”

Kim Harrison
MCAP Co-Chair.

2026 THEME

Putting mito on the map

Mito affects people around the world, but many people still have not heard of it. This World Mitochondrial Disease Week, we are helping put mito on the map.

Every story, conversation and awareness activity helps make mito more visible. Together, we can build understanding, strengthen connection and help more people living with mito feel seen.

MORE INFORMATION

Find out more about this year’s theme, access global campaign resources, and choose how you would like to take part.

How to get involved

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Ask a local landmark to light up

Help bring your local iconic landmarks on board. Use our ready-to-send email template to ask your council, stadium, or favourite building to join the glow.

Download the landmark email here. 

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Light up at home

Switch on a green bulb, change your porch light, or use smart lighting to glow green. Share your photos and inspire your neighbourhood to join in.

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Contact local media

You can play a powerful role in raising awareness. One simple way is by contacting your local media to share what Light Up for Mito means to you. To make it easy, we’ve prepared a template email and tips you can use.

Download the media template here.

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Share your story

Why are you lighting up? Share your story with us at communications@mito.org.au.

Your voice can inspire others to join the mito movement.

Landmarks lighting up across Australia

130

confirmed landmarks
as of Monday 14 August 2026

ACT 21 | NSW 15 | NT 5 | QLD 19 | TAS 9 | SA 14 | VIC 18 | WA 29

See what’s happening globally during World Mitochondrial Disease Week