Your Donations at Work

Your donations are making a substantial difference to people affected by mitochondrial disease (mito). You have enabled services to support patients today, while providing hope for the future by funding research and advocacy. Thank you!

In the first half of 2021, your generous donations have delivered:

Hope For Australian Families

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One step closer to offering eligible women the option to have children without passing on the devastating effects of mito. The Australian Government introduced the Mitochondrial Donation Law Reform (Maeve’s Law) Bill to Parliament and committed $10.3 million to make it happen.

Promising New Research

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$1.24 million in funding was committed to nine new research projects striving to improve diagnosis and seek effective treatments and cures.

New Therapies To Manage Mito

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One Research Fellowship was completed. The findings will drive targeted therapies to improve the quality of life of people with mito.

A Pathway To Medical Breakthroughs

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Three research studies and clinical trials gave Australians impacted by mito the chance to be part of the next medical breakthrough.

A Forum for Community Members to Connect

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16 Mito Meet-ups helped people impacted by mito to build connections and peer support networks in their local communities. Three were specifically for parents of children with mito.

A Place For Patients To Receive Expert Advice

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3 Mito Information Days allowed people affected by mito all over Australia to hear the latest information from experts.

Tailored Advice And Care

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56 families received help with tailored advice, care plans and referrals through the Patient Pathways Program. 82% reported a reduction in anxiety since joining the program.

Support For People Impacted By Mito

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116 cases of helpline support assisted the mito community to seek a diagnosis, find information or take part in a patient study.

Improved Knowledge Of Mito For Health Professionals

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209 GPs engaged with the Maybe it's Mitochondrial Disease GP education module. Earlier detection and increased rates of diagnosis will help thousands of Australians access specialist care sooner and manage their symptoms better.