The Mito Foundation aims to transform outcomes for the mito community by driving meaningful change and funding essential research into the prevention, diagnosis, treatment and cures of mitochondrial disorders. It provides resources and support services for people impacted by mito, and their families, while increasing awareness and understanding of this devastating disease.
The Code of Ethics describes an ethical framework for Directors of Mito Foundation and for members, employees or volunteers acting for Mito Foundation, however it does not replace any ethical or legal obligation provided by the Companies Act or individual professional bodies or employers.
Provision of Information
Mito Foundation will only provide accurate, scientifically valid information to the public and to health professionals and researchers.
Provision of Support
Any financial or other forms of support provided by Mito Foundation will be given on an equitable, non-discriminatory basis.
Research
Mito Foundation will only support research performed in an ethical manner that complies with national guidelines. These currently include the National Health & Medical Research Council National Statement on Ethical Conduct in Human Research (2007 – updated May 2015) and the Australian code of practice for the care and use of animals for scientific purposes 8th edition (2013).
Mito Foundation will only support research that has obtained appropriate approval from a relevant Human Research Ethics Committee or Animal Ethics Committee.
Mito Foundation will follow ethical guidelines when asked to facilitate or recruit subjects for research studies.
Applications for research funding will be assessed by a fair and transparent process of independent peer review.
Conflicts of Interest
Individuals acting on behalf of Mito Foundation will declare any potential Conflicts of Interest that may influence them in assessing or promoting research applications, therapies, policy statements or information statements.
Use of Personal Information and Images
Mito Foundation will safeguard privacy and autonomy by obtaining appropriate informed consent from individuals and from parents or guardians of children prior to the use of any personal information or images that are potentially identifiable.
Mito Foundation will not disclose names or potentially identifying information about children.
Sponsorship
Mito Foundation welcomes sponsorship of its activities by appropriate individuals, companies and other organisations. Acceptance of such sponsorship does not imply endorsement by Mito Foundation of any products, claims or services that may be provided by the sponsor.