The Mito Foundation provides resources to empower individuals to make informed choices and help navigate life with mitochondrial disease (mito). 

Practical information for
living with mito

Be your own advocate

Webpage

When you have a chronic illness like mito, one of the most important things you can do to help yourself is to speak up for your needs.

Be your child's advocate

Webpage

When your child has a chronic illness like mito, it’s crucial to let others know what they need.

Advance care planning

Fact Sheet Page

Everyone should consider advance care planning, regardless of age or health. It can be particularly important if you live with a chronic illness, such as mitochondrial disease (mito). This information sheet will walk through the basics of Advance Care Planning and the considerations for families.

Making health and medical decisions

Fact Sheet Page

You have the right to make informed decisions about your healthcare. This includes asking questions, being part of discussions, and making choices.

Access to health care in rural and remote Australia

Fact Sheet Page

In rural and remote Australia, the way you access health care may look different to how you access it in a city. Knowing how to access health care and subsidies can help you get the health care you need.

Building a care team in rural and remote Australia

Fact Sheet Page

In rural and remote Australia, accessing good health care can sometimes be tough. But finding a care team that really understands what you need can make all the difference.

Types of mitochondrial disease (mito)

Webpage

There are many different types of mitochondrial disease (mito), and each one can affect people in different ways. This page has information sheets to help you learn more about the different types of mito. You can search by name, the gene involved, or a specific genetic change. Use the search bar or explore the list to find the information you need.

Exercise and mito resources

Fact Sheet Page

Information on how regular exercise can help you in lots of ways if you have mito. Read some easy tips for safely getting started with an exercise program, setting goals.

NDIS assistance for LHON

Fact Sheet Page

If you have a vision impairment caused by Leber Hereditary Optic Neuropathy (LHON), you may be able to access support through the National Disability Insurance Scheme (NDIS).

Paediatric palliative care

Fact Sheet Page

Palliative care provides comfort and support to your child and family.

Exercise and mito

Fact Sheet Page

Regular exercise helps your mitochondria work better, boosting energy, improving fitness, and supporting overall health, but for people with mitochondrial disease (mito), it’s important to exercise safely with a tailored approach. Read more about exercise and mito in this resource.

Genetic testing and mito

Fact Sheet Page

Information about genetic testing and mitochondrial disease (mito).
More resources

Useful Webpages

For Newly Diagnosed

A useful guide for your first steps towards living with mito

For Adults Managing Mito

A guide to key services and resources for adults to manage mito

For Parents and Children Managing Mito

A guide to key services and resources for parents and/or children to manage mito

Services

Helpline

Call the Mito Helpline to talk to a support officer for general advice, assistance in seeking a referral or more information on Mito Foundation support services.

Contact Helpline

Events

Attend a support event in your local area or online, including Mito Information Days, Mito Meet-ups and Mito Connect Calls to keep you informed and connected.

Learn More

NDIS Navigation service

Maximise your success in seeking support under the NDIS.

Find out more

Peer Support Network

We offer individual connections within the mito community, reducing loneliness.

Learn more

Mito Registry

The Mito Registry collects important information about Australians with confirmed or suspected mito for the purpose of research into treatments and cures.

Learn More