The Mito Foundation provides resources to empower individuals to make informed choices and help navigate life with mitochondrial disease (mito). 

Practical information for
living with mito

Link to Advance Care Planning Fact Sheet Page

Advance Care Planning

Fact Sheet Page

Everyone should consider advance care planning, regardless of age or health. It can be particularly important if you live with a chronic illness, such as mitochondrial disease (mito). This information sheet will walk through the basics of Advance Care Planning and the considerations for families.

Link to Preparing for a medical appointment Fact Sheet Page

Preparing for a medical appointment

Fact Sheet Page

The information provided focuses on how you can prepare for your medical appointments. For example, for an appointment with your GP, endocrinologist, or dietician. It also focuses on how your mito specialist can support your ongoing care, to ensure you receive the right care.

Link to Making health and medical decisions Fact Sheet Page

Making health and medical decisions

Fact Sheet Page

You have the right to make informed decisions about your healthcare. This includes asking questions, being part of discussions, and making choices.

Link to NDIS Reference Guide Fact Sheet Page

NDIS Reference Guide

Fact Sheet Page

This reference guide is designed to give mito community members a quick reference for general NDIS acconyms and an overview of people/roles they may encounter on their NDIS journey.

Link to Nutrition and Mito Fact Sheet Page

Nutrition and Mito

Fact Sheet Page

It’s important to eat well when you have mito to keep your body functioning at its best. Find out how to get plenty of nutrition from a healthy diet.

Link to Genetics and Mito Fact Sheet Page

Genetics and Mito

Fact Sheet Page

All your physical features are controlled by your genes, which you inherited from your parents. Genetic changes can lead to diseases such as mitochondrial disease.

Link to Exercise and Mitochondrial Disease Fact Sheet Page

Exercise and Mitochondrial Disease

Fact Sheet Page

Regular exercise can help you in lots of ways if you have mito. Read some easy tips for safely getting started with an exercise program, setting goals.

Link to Travelling with medication Fact Sheet Page

Travelling with medication

Fact Sheet Page

Information and tips to travel safely with your medicines and medical devices.

Link to Travelling with mito  Fact Sheet Page

Travelling with mito

Fact Sheet Page

Travelling can be thrilling but also challenging for those with mitochondrial disease(mito). This information aims to assist in the planning processt o make the journey more enjoyable.

Link to Travel insurance Fact Sheet Page

Travel insurance

Fact Sheet Page

Information about travel insurance when impacted by mitochondrial disease (mito).

Useful Webpages

For Newly Diagnosed

A useful guide for your first steps towards living with mito

For Adults Managing Mito

A guide to key services and resources for adults to manage mito

For Parents and Children Managing Mito

A guide to key services and resources for parents and/or children to manage mito

Services

Call the Mito Helpline to talk to a support officer for general advice, assistance in seeking a referral or more information on Mito Foundation support services.

Attend a support event in your local area or online, including Mito Information Days, Mito Meet-ups and Mito Connect Calls to keep you informed and connected.

Our dedicated Pathways Telehealth Nurse will work with you to develop a tailor-made care plan to provide support, education and connection with other services.

Maximise your success in seeking support under the NDIS.

We offer individual connections within the mito community, reducing loneliness.

The Mito Registry collects important information about Australians with confirmed or suspected mito for the purpose of research into treatments and cures.