The following webpage is filled with resources, services and handy links to help manage your day to day life mitochondrial disease (mito).

You will learn how to manage lifestyle changes, access support and insurance, and how to talk to people about mito.

Useful Webpages

For Newly Diagnosed

A useful guide for your first steps towards living with mito

For Adults Managing Mito

A guide to key services and resources for adults to manage mito

For Parents and Children Managing Mito

A guide to key services and resources for parents and/or children to manage mito

Key Services

Call the Mito Helpline to talk to a support officer for general advice, assistance in seeking a referral or more information on Mito Foundation support services.

Our dedicated Patient Pathways Nurse will work with you to develop a tailor-made care plan to provide support, education and connection with other services.

 Attend a support event in your local area or online, including Information Days, Mito Meet-ups and Mito Connect Calls to keep you informed and connected.

The Mito Registry collects important information about Australians with confirmed or suspected mito for the purpose of research into treatments and cures.

Helpful Resources

Link to Tips on how to strengthen your case for NDIS support Video

Tips on how to strengthen your case for NDIS support

Video

At a Perth Mito Information Day, Tammy Whait covered ways to strengthen your case for NDIS support when applying for the first time or approaching a plan review.

Link to Physiotherapy options for Children living with Mito Video

Physiotherapy options for Children living with Mito

Video

At a Perth Mito Information Day, Amy Piesse explored best practice physiotherapy options for children living with mito.

Link to Diet and Exercise for Children with Mito Video

Diet and Exercise for Children with Mito

Video

At a Digital Paediatric Mito Information Day, Dr Maina Kava spoke about nutritional and exercise therapies that specialists use to improve the quality of life and health outcomes for children with mito.

Link to Palliative Care - Supporting the Child and Family Video

Palliative Care - Supporting the Child and Family

Video

At a Digital Paediatric Mito Information Day, Dr Martha Mherekumombe shared an overview of paediatric palliative care.

Link to Update on Supplements and Treatments for Children with Mito Video

Update on Supplements and Treatments for Children with Mito

Video

At a Digital Paediatric Mito Information Day, Dr Shanti Balasubramaniam provided an overview of the therapeutic approaches used to treat patients with primary mitochondrial disorders.

Link to The Importance of Quality of Life Video

The Importance of Quality of Life

Video
Shelley Beverley, Registered Psychologist and Mito Community Advisory Panel (MCAP) member, presented the importance of wellbeing and maintaining a quality of life while living with mitochondrial disease (mito).
Link to The Emotional Challenges of Physical Symptoms Video

The Emotional Challenges of Physical Symptoms

Video
Shelley Beverley (mito community member and registered Psychologist) walkthrough the emotional toll of mito from a professional and personal perspective. Please clickthrough to download the PDF presentation.
Link to The NDIS Journey Video

The NDIS Journey

Video

Preeti Raghwani (mito community member and NDIS Support Coordinator) provides an introduction to navigating the National Disability Insurance Scheme (NDIS).

Link to Preparing for Specialist Medical Appointments Fact Sheet

Preparing for Specialist Medical Appointments

Fact Sheet

This fact sheet provides helps and tips to gain the most benefit from your appointments. It is important to come prepared.