The Mito Foundation provides resources to empower individuals to make informed choices and help navigate life with mitochondrial disease (mito). 

Practical information for
living with mito

Link to Types of mitochondrial disease (mito) Webpage

Types of mitochondrial disease (mito)

Webpage

There are many different types of mitochondrial disease (mito), and each one can affect people in different ways. This page has information sheets to help you learn more about the different types of mito. You can search by name, the gene involved, or a specific genetic change. Use the search bar or explore the list to find the information you need.

mito website

Webpage

summary

Link to Exercise and mito resources Fact Sheet Page

Exercise and mito resources

Fact Sheet Page

Information on how regular exercise can help you in lots of ways if you have mito. Read some easy tips for safely getting started with an exercise program, setting goals.

Link to NDIS assistance for LHON Fact Sheet Page

NDIS assistance for LHON

Fact Sheet Page

If you have a vision impairment caused by Leber Hereditary Optic Neuropathy (LHON), you may be able to access support through the National Disability Insurance Scheme (NDIS).

Link to Paediatric palliative care Fact Sheet Page

Paediatric palliative care

Fact Sheet Page

Palliative care provides comfort and support to your child and family.

Link to Exercise and mito Fact Sheet Page

Exercise and mito

Fact Sheet Page

Regular exercise helps your mitochondria work better, boosting energy, improving fitness, and supporting overall health, but for people with mitochondrial disease (mito), it’s important to exercise safely with a tailored approach. Read more about exercise and mito in this resource.

Link to Genetic testing and mito Fact Sheet Page

Genetic testing and mito

Fact Sheet Page

Information about genetic testing and mitochondrial disease (mito).

Link to Mental health support Webpage

Mental health support

Webpage

Taking care of your mental health is just as important as taking care of your physical health. Our mental health resources connect you to free support services, tools, and tips to help you feel more in control.

Link to NDIS Reference Guide Fact Sheet Page

NDIS Reference Guide

Fact Sheet Page

The NDIS can be hard to follow, especially with new terms and roles. This guide explains common words, funding types, and key people you might meet. It brings together helpful information in one place to make navigating the NDIS easier.

Link to Ongoing monitoring of mito for children Webpage

Ongoing monitoring of mito for children

Webpage

Regular tests are recommended for most people with mitochondrial disease (mito). Most of these will look for changes in how mito is affecting your child.

Link to Fatigue and mito Fact Sheet Page

Fatigue and mito

Fact Sheet Page

Fatigue is a symptom that varies from person to person and can’t easily be seen from the outside. It’s a common symptom in people diagnosed with mitochondrial disease (mito), and can contribute to feelings of loneliness and frustration. Read this resource to find out more.

Link to Nutrition and Mito Fact Sheet Page

Nutrition and Mito

Fact Sheet Page

Information on the importance of eating well when you have mitochondrial disease (mito) to keep your body functioning at its best. Find out how to get plenty of nutrition from a healthy diet.

More resources

Useful Webpages

For Newly Diagnosed

A useful guide for your first steps towards living with mito

For Adults Managing Mito

A guide to key services and resources for adults to manage mito

For Parents and Children Managing Mito

A guide to key services and resources for parents and/or children to manage mito

Services

Helpline

Call the Mito Helpline to talk to a support officer for general advice, assistance in seeking a referral or more information on Mito Foundation support services.

Contact Helpline

Events

Attend a support event in your local area or online, including Mito Information Days, Mito Meet-ups and Mito Connect Calls to keep you informed and connected.

Learn More

NDIS Navigation service

Maximise your success in seeking support under the NDIS.

Find out more

Peer Support Network

We offer individual connections within the mito community, reducing loneliness.

Learn more

Mito Registry

The Mito Registry collects important information about Australians with confirmed or suspected mito for the purpose of research into treatments and cures.

Learn More