The following webpage is filled with resources, services and handy links to help manage your day to day life mitochondrial disease (mito).

You will learn how to manage lifestyle changes, access support and insurance, and how to talk to people about mito.

Useful Webpages

For Newly Diagnosed

A useful guide for your first steps towards living with mito

For Adults Managing Mito

A guide to key services and resources for adults to manage mito

For Parents and Children Managing Mito

A guide to key services and resources for parents and/or children to manage mito

Key Services

Call the Mito Helpline to talk to a support officer for general advice, assistance in seeking a referral or more information on Mito Foundation support services.

Our dedicated Patient Pathways Nurse will work with you to develop a tailor-made care plan to provide support, education and connection with other services.

 Attend a support event in your local area or online, including Information Days, Mito Meet-ups and Mito Connect Calls to keep you informed and connected.

The Mito Registry collects important information about Australians with confirmed or suspected mito for the purpose of research into treatments and cures.

Helpful Resources

Link to The Emotional Challenges of Physical Symptoms Video

The Emotional Challenges of Physical Symptoms

Video
Shelley Beverley (mito community member and registered Psychologist) walkthrough the emotional toll of mito from a professional and personal perspective. Please clickthrough to download the PDF presentation.
Link to The NDIS Journey Video

The NDIS Journey

Video

Preeti Raghwani (mito community member and NDIS Support Coordinator) provides an introduction to navigating the National Disability Insurance Scheme (NDIS).

Link to Preparing for Specialist Medical Appointments Fact Sheet

Preparing for Specialist Medical Appointments

Fact Sheet

This fact sheet provides helps and tips to gain the most benefit from your appointments. It is important to come prepared.

Link to The Psychological Impacts of Mito Fact Sheet

The Psychological Impacts of Mito

Fact Sheet

A diagnosis of mit for you or a loved one can be very stressful and may leave you experiencing a rollercoaster of emotions. This fact sheets provides assistance to navigate these emotions.

Link to Patient Pathways Program Introduction Video

Patient Pathways Program Introduction

Video

Michele Hemmings (Patient Pathways Telehealth Nurse) introduces the Patient Pathways Program and shares why members of the mito community can benefit from accessing this service. To learn more, please call our Helpline on 1300 977 180 or email helpline@mito.org.au

Link to Making Health and Medical Decisions Fact Sheet

Making Health and Medical Decisions

Fact Sheet

This fact sheet discusses advocacy services for health, disability and other services. It provides information about advance care planning and appointing a Power of Attorney.

Link to How Might Supplements Fit into the Overall Treatment of Mito Video

How Might Supplements Fit into the Overall Treatment of Mito

Video

Dr Christina Liang explores different supplement options for people living with mito and how they may fit into treatment plans.

Link to Fatigue in Mitochondrial Disease Video

Fatigue in Mitochondrial Disease

Video

Dr Christine Wools explores the different elements of fatigue, looking at how it is measured, different contributors and the treatments available.

Link to Nutrition and Mito Fact Sheet Page

Nutrition and Mito

Fact Sheet Page

It’s important to eat well when you have mito to keep your body functioning at its best. Find out how to get plenty of nutrition from a healthy diet.